IEM Inborn Errors of Metabolism Grant 

There have been changes to the way the Inborn Errors of Metabolism Grant is being processed moving forward.

Patients diagnosed with PKU must re-apply for the IEM Grant every 12 months.

It is the responsibility of all patients to schedule review appointments, as required by their treating metabolic specialists and to ensure applications are provided to the Department prior to their annual review date.

Metabolic Specialists will be required to notify the Department of patients who fail to comply with the conditions of the IEM program. Following this advice, and if the situation is not adequately addressed, the IEM grant may be withdrawn.

The Department will not issue reminder notices. Grant payments will cease if the re-application is not received.

Contact details for the IEM Grant 
IEM Program Officer Pharmaceutical Benefits Division Department of Health & Aging MDP 953, GPO Box 9848 Canberra ACT 2601

Phone: (02) 6289 8980, Fax: (02) 6289 8537, Email: iemprogramofficer@health.gov.au

Further information in relation to the IEM Grant and application forms >