Annual Events

Below are some annual Events & Fundraisers. We urge you where possible to become involved in these events or support these fundraisers where possible.

Rare Disease Day

Rare Disease Day, celebrated each year on 28 February (a rare day), raises Awareness about rare diseases and the impacts they have on those affected personally and their families. The Australia Rare Disease Day website provides a platform for those affected by rare diseases to communicate and sharing experiences as well as raising Awareness amongst the general public.



PKU Awareness Day

1st May annually is PKU Awareness Day Nationally. On this day our focus is to make the greater community aware of PKU.


Lab Coat Awareness Walk

Come along and join in our Lab Coat Awareness Walk as we create Awareness of PKU on our Awareness Day. We walk in our lab coats with our team mascot Phen and spread the word about PKU. Get a TEAM together, walk by yourself, your cat or dog in your Awareness Lab coat to promote Awareness of PKU around Australia.


PKU Annual Gala Dinner

Usually around June each year, this is our major fundraiser to raise funds into research currently ongoing into PKU. Tickets always sell fast to this extravagant event so you had better book them early.



How else to get more involved and also promote PKU than to run or walk the Sydney City2Surf in August with our team mascot ‘Phen’ the platypus. Details of how to join us or register are available on our Events page from June.
This year the City2Surf will be held on Sunday 13th August. Visit


Bi-Annual National PKU Youth Camp

The Youth Camp is a great opportunity for children with PKU to get together between the ages of 8-17 and enjoy activities such as archery & rock climbing while getting to know about other kids from around Australia who have PKU. They also learn more about PKU, how others manage their PKU, and importantly, become aware of other food ideas and recipes to assist with the diet.


End of Year Picnic

Join us in a family friendly park for a picnic catered by the committee and meet others families & friends with PKU. This is usually held the last Sunday of November annually.