My name is Justine Inglis, I am a 43yrs old with PKU. I was born and raised in New Plymouth, New Zealand - moved to Australia in 2004. I was diagnosed at 5 days old at Taranaki Base Hospital in New Plymouth via the Guthrie Newborn Screening test. My birth PHE level was 1500.
Have you ever met someone who has PKU?
I know most of you reading this would say yes, but I know lots of people who haven‟t heard anything at all about PKU until I tell them everything there is to know! And they wouldn't even know that PKU actually stands for Phenylketonuria and every reaction I get is „what‟ or „huh‟.