Links

ASIEM PKU Handbook
In 2005 the Australasian Society for Inborn Errors of Metabolism (ASIEM) produced a handbook for families of children with PKU and people with PKU, which provides a practical guide for management.

MDDA Metabolic Dietary Disorders Association
The MDDA is a self-help, not-for-profit, support group that was set up in 1996 to assist members and their families with the complex issues in dealing with metabolic dietary disorders.

AGSA - The Association of Genetic Support
The Association of Genetic Support is a network of people who are affected by genetic conditions, either directly or indirectly. They have a contact register with over 500 genetic contacts and details of support groups.

SHS Nutricia
Dairyfree