The PKU (Phenylketonuria)
Association of NSW Inc.
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What is PKU ?
About the Association
Awareness & Publications
National PKU Youth Camp
PKU Awareness Day
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Adults & Teens
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PKU Journal (PDF)
Links Directory - Australia
ASIEM PKU Handbook
In 2005 the Australasian Society for Inborn Errors of Metabolism (ASIEM) produced a handbook for families of children with PKU and people with PKU, which provides a practical guide for management.
MDDA Metabolic Dietary Disorders Association
The MDDA is a self-help, not-for-profit, support group that was set up in 1996 to assist members and their families with the complex issues in dealing with metabolic dietary disorders.
Nutricia Australia - Nutrition4ME website
Information on Inborn Errors of metabolism for Australians. Also online ordering systems for Loprofin products.
Information on Inborn Errors of metabolism for Australians. Also order Fate products through Vitaflo.
AGSA - The Association of Genetic Support
The Association of Genetic Support is a network of people who are affected by genetic conditions, either directly or indirectly. They have a contact register with over 500 genetic contacts and details of support groups.
Allergy Friendly Foods
Allergy Friendly Foods provide Specialty low allergen foods to cater for those with multiple allergies specialty diets and conditions such as asthma, eczema, autism, PKU, coeliac disease, ADHD & reflux.
Choices Gluten Free
Online store and shopfront at Turramurra and Bella Vista NSW, this innovative bakery specialising in Gourmet Gluten and Wheat Free bread, pastry, pies and cakes has several low-protein options such as bagettes, bagels, pita and loaf breads.
Vegies to your Door
Home delivery of Canberra's freshest fruit and vegetables. Owned and operated by a PKU family who knows the value of ‘fresh’ food.
Go to International Links
The PKU (Phenylketonuria) Association of NSW Inc.