Fundraise

We have a very small existence in the metabolic world but an important one. Our wonderful team of doctors & researchers that help our children through from birth to adulthood are running out of money for Research, and, if money isn't raised we will lose them and Research on PKU will come to a halt. Now I know you might be thinking that it is not that big a deal but the lives of our family & friends would not be what they are now without the assistance of the doctors, dieticians & researchers at the hospitals we attend. We have a long way to go and are all waiting for a miracle that will one day help everyone with PKU to live a better life just like normal people lead. Support us to try to keep the doctors that are needed to research this in order to help people with Phenylketonuria.

If you have an idea for a fundraising event, the Association will support you in bringing that idea to fruition. We love new ideas! Either attend a committee meeting (which are open for all to attend – not just committee members) or send your idea to This email address is being protected from spambots. You need JavaScript enabled to view it. and we will be in contact to discuss further.

Annual PKU NSW Fundraisers

  • May – Lab Coat Awareness Walk
  • June – Annual PKU Gala Dinner
  • August – City2Surf
  • September – PKU Charity Golf Day

If you have the capacity to come on board and raise money for the research project these are some ideas that you may be interested in, contact us This email address is being protected from spambots. You need JavaScript enabled to view it..

Fundraising Ideas

Local barbecue, shopping bus trip, car boot sale, sunscreen fundraiser, toothpaste fundraiser, lolly buffet, new years eve party, gift card sale, afternoon tea party, cake sale, trivia night, event dinner.

Attached are our fundraiser terms & conditions