Adults & Teens

One of the Association's goals is to actively re-establish contact with adults who have PKU and do not attend the Adult Metabolic Clinic.

We put the call out to all individuals with PKU to:

Stay informed

• Make an appointment with the Adult Metabolic Clinic for up-to-date information on the management of PKU
• Learn about the many new products available to choose from
• Subscribe to the PKU Association of NSW newsletter for updates on research and management tips
• Log on to this website regularly.

Get involved

• Become a member of the Association - having as little or as much involvement as you choose
• Come along to Association events to meet others with PKU
• Build a brighter future by helping with fundraising initiatives
• Consider filling a role within the association, or at our National PKU Youth Camp

Adult Metabolic Clinic in Sydney

The Adult Metabolic Clinic at Westmead Hospital (next door to the Children’s Hospital) is now up and fully functional. The clinic is open on a Thursday morning by appointment only.

Michel Tchan, the medical head has advised that adults with PKU wishing to make a clinic appointment should:

1. Contact the department on 02 9845 9780 
2. Have a GP referral faxed to 02 9845 9789
3. Secure an appointment

Letter from Dr Michel Tchan Re: AdultGenetic Metabolic Disorders Service

You might have heard that there is a newly established service for adults with inborn errors of metabolism based at Westmead Hospital. Our service received funding from NSW Health in order to provide health care to all the adults in NSW with one of these disorders. This also includes all the patients who will “graduate” from the children’s hospitals in the years to come. We are a small team that includes a clinical geneticist (myself) who trained under Professors Wilcken and Christodoulou, a dietician, a genetic counsellor and a registrar (doctor in the final years of advanced training).

We currently look after more than a hundred adults with PKU and would welcome seeing anyone else in the community who might have“dropped off the radar”. We would particularly like to see the younger women who might be thinking of having a family of their own some day. Patients can contact the department on 98459780 and speak to one of our team. We could then see them in our regular Thursday morning clinic at Westmead hospital. We also hold a monthly clinic at Prince of Wales hospital and clinics at Newcastle three to five times a year.

Dr Michel Tchan

Clinical Geneticist

Adult Clinics Around Australia (You will need a GP referral)

South Australia
Royal Adelaide Hospital, Outpatients department (9th Floor)
On the first & third Friday mornings of each month.
Appointments for the Adult Clinic can be made by phoning the level 9 outpatients clerk, 08 8222 5174
 
New South Wales
Westmead Hospital, Adult Metabolic Clinic
Adults wishing to make an appointment please call Genetic Medicine on 02 9845 9780
 
Victoria (also covers Tasmanian patients)
Monash Medical Centre, Clayton
Level 1, Clinical Nutrition & Metabolism Unit, 03 9594 1362

Western Australia
Royal Perth Outpatients Clinic
An outpatient clinic is held every second Monday morning at the Goderich Street Outpatient Clinic under the care of Dr John Burnett. Outpatients appointments can be made on 1300 855 275.
 
Queensland
Mater Hospital, Brisbane
Clinics are held in the specialist clinics area of the Neurometabolic Department, Level 4, Raymond Terrace under the care of Prof Frank Bowling and other physicians, 07 3163 1697.
Adults are also still continuing to be seen at the Royal Childrens Hospital by the Metabolic Team on Herston Road, 07 3636 8111 (switchboard)