Adults & Teens

One of the Association's goals is to actively re-establish contact with adults who have PKU and do not attend the Adult Metabolic Clinic.

We put the call out to all individuals with PKU to:

Stay informed

• Make an appointment with the Adult Metabolic Clinic for up-to-date information on the management of PKU
• Learn about the many new products available to choose from
• Subscribe to the PKU Association of NSW newsletter for updates on research and management tips
• Log on to this website regularly.

Get involved

• Become a member of the Association - having as little or as much involvement as you choose
• Come along to Association events to meet others with PKU
• Build a brighter future by helping with fundraising initiatives
• Consider filling a role within the association, or at our National PKU Youth Camp

Adult Metabolic Clinic in Sydney

The Adult Metabolic Clinic at Westmead Hospital (next door to the Children’s Hospital) is fully functional.
The clinic is open on a Thursday morning by appointment only.

Michel Tchan, the medical head has advised that adults with PKU wishing to make a clinic appointment should:

1. Contact the Genetic Medicine department on 02 9845 9780 
2. Have a GP referral faxed to 02 9845 9789
3. Secure an appointment

Adult Clinic Around Australia

You will need a GP referral

South Australia
Royal Adelaide Hospital, Outpatients department (9th floor)
On the first & third Friday mornings of each month.

Appointments for the Adult Clinic can be made by phoning the level 9 outpatients clerk, 08 8222 5174

Victoria (also covers Tasmanian patients)
Monash Medical Centre, Clayton

Level 1, Clinical Nutrition & Metabolism Unit, 03 9594 1362

Western Australia
Royal Perth Outpatients Clinic
An outpatient clinic is held every second Monday morning at the Goderich Street Outpatient Clinic under the care of Dr John Burnett.

Outpatients appointments can be made on 1300 855 275

Queensland
Mater Hospital, Brisbane
Clinics are held in the specialist clinics area of the Neurometabolic Department, Level 4, Raymond Terrace under the care of Prof Frank Bowling and other physicians, 07 3163 1697.

Adults are also still continuing to be seen at the Royal Childrens Hospital by the Metalobic Team on Herston Road, 07 3636 8111 (switchboard)